Teen Suffers Up to 18 Dislocations in a Day
17-year-old Phoebe Bruce from Wales suffers from a rare condition that causes her to dislocate her limbs up to 18 times in a day.
The teen has an extreme form of Ehlers-Danlos syndrome, a genetic condition which causes extremely loose joints. Bruce’s father suffers from the same condition, but in a milder form.
Unfortunately for the teen, her condition is so severe, that even a yawn can cause one of her limbs to dislocate.
“It’s really painful, but I just have to get on with things,” Bruce explained to the Mirror. “That’s what I do. Putting my limbs back in is quite hard to do, but I switch my brain off and don’t think about what I’m doing. Popping a dislocation back in hurts twice as much as when it comes out. I don’t know how I do it.”
Bruce gets around with a wheelchair and has help from teaching assistants in school. Unfortunately, her condition has gradually worsened, causing her to be admitted to the hospital over 100 times this year.
“I don’t get frustrated, but it’s hard to put up with how it affects my life. I really need someone to come and help me soon,” she pleaded.
Despite constant moments of excruciating pain, Bruce has tried to remain optimistic, talking about the bond between her and her dad.
“We sort of have this bond where we tend to laugh about it, rather than cry about it,” she said. “Obviously when you’re in the pain, it’s different — it’s hard to cope then. But on a day to day basis, if you don’t laugh about it, you’re gonna cry at the end of the day.”
“It’s heartbreaking. You don’t expect your little girl to go through that pain every single day like she is,” Bruce’s mother, Yvonne said. “It’s awful. The screams coming from her every single day — it tears your heart apart. We just want it to go away and get better.”
There is no cure for her condition, but her parents are trying to find funding for a surgery that may help improve her condition. Bruce’s relatives have set up a fundraising account called the “The Phoebe Bruce Trust” on justgiving.com.